In this body of work I have documented the story of Karen who contracted Lyme disease after being bitten by a tick about 25 years ago. I met Karen while her and her partner were preparing to go overseas for Hyperthermia treatment, where her body was heated to 42 degrees in an attempt to kill the infections.

It was only last year that Karen considered taking her own life. There was no light at the end of the tunnel, all she could see was darkness. Lyme disease had taken everything. She knew exactly how to do it leaving no chance for survival. She researched online for the best bags to use for suffocation to avoid the last minute adrenalin rush to rip the bag off her head. “You buy sheets in these bags, they’re really thick and you can’t rip it open if you decide you want out”.

The Lyme Project is a long-term body of work, which continues to follow Karen and other Lyme patients who simply want to be acknowledged and have affordable access to appropriate medical treatment in Australia.

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